Josh saw Dr. M on Friday. His glaucoma and vision is stable, no changes. Praise God!
But his right eye continues to do an upsweep when he looks to the left. Dr. M started to look through Josh's chart to review his previous eye muscle surgeries, but realized that he only had chart II, not chart I. Josh's chart is so thick that it had to be divided into two volumes! Dr. M said he needed to go to the archives to get the other volume, and would take some time to review it.
We had a different ped ophth for a very short time, a couple years ago, who was closer to where we live, but he was not experienced with children with PHPV, so we went back to Dr. M. Unfortunately, we allowed this other doctor to do an eye muscle surgery on Josh. Dr. M had to fix the damage to Josh's eye, as well as correct the problem the other doctor was supposed to have fixed.
Depending on what this other doctor did, will affect if Josh's current eye muscle problem can be fixed.
Waiting is not an easy thing for me. But I am now waiting for Dr. M to call me to tell me if Josh's eye muscle problem is fixable, or if he will just have to learn to live with it. It is dificult for me to know how to pray in this instance. I want Josh to have optimal vision, and that would mean being able to fix this eye muscle issue. But I dread more surgery, I dread more anesthesia, I dread seeing my little guy once again suffer post-op pain.
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