Another Update on Josh

We saw the contact lens specialist on Tuesday. He was pleased with how well Josh is doing with his new lens. He warned me that Josh will be prone to allergies this summer. No surprise to me, since many of my kids have seasonal allergies. I asked him if we should use Claritin. He looked at me as though I had taken leave of my senses. No Claritin, or any allergy meds. We are to use the rewetting drops only, to wash away any allergens and moisten the lens.
The lens specialist then went on to say that we should not use any meds, even prescribed by our family doctor, unless we contact him or our pediatric ophthalmologist first. And, absolutely no steroids.

These meds can all raise the pressure inside Josh's already compromised eye.
Last winter Josh had pneumonia. We took him to the doctor the day I had a prenatal appt. Our family doctor asked me if we "do" steroids for Josh. I was so sick, I did not even think that I vaguely remembered steroids were a no-no for Josh. I went in to the hospital to be induced later that day. Praise God for keeping Josh's little eye safe!

I contacted our family doctor on Tuesday to request this info to be placed in Josh's records, so this will not happen again.

Josh has not experienced any redness since we got his new custom made lens....until last night. When I put his drops in at bedtime I noticed his eye was very red. I'm not sure how it can go from looking perfectly fine earlier in the day to being red, but it did.
I took the lens out and called both doctors this morning. The lens specialist's office said to put it in for a couple hours later today. The pediatric ophth said to leave it out for 24hrs and let him know how it looks. With Josh's history, I think I will err on the side of caution, even though his eye does look less red today.

Both doctor's offices asked if Josh is experiencing pain with his red eye. I know that is a standard question, but Josh never complains, or admits to pain in his eye. His eye has been through so much, and has so much scar tissue, I am certain his perception of pain is decreased. He has only complained of pain one time, and that was scarey, since it caused me to wonder if it was eye pressure related, rather than irritation.

I am trying to remain optomistic, look at this as a tiny bump in the road and not a complete wash. It is hard, since this is the same pattern we were having with his old Silsoft lenses.
Little boys are not supposed to have cataracts, glaucoma and decreased perception of pain. But this is Josh's life, for whatever reason, this is what God has ordained for Josh, before any of his days ever began.
Blessed be the name of the Lord!